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IMAGINE THIS. Three of your children are suffering from a lifelong and life-threatening illness. This disease can't be cured, it is progressive and although it is managed, it affects your whole family to the point where daily life, even the most mundane considerations, revolve around this problem. You can't even go on a holiday because of the threat of emergency hospitalisation.
Over the years there are advances in treatments, and possibilities of better long-term management, but you never really entertain the possibility that in your children's lifetime scientists will discover the holy grail--The Cure.
Suddenly, the press is full of stories promising ...