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Tommy's face shines with hope and impish optimism. His tenth birthday is on the horizon as he smiles for the family Christmas photo circa 1964. He stands surrounded by his parents, two sisters and four brothers--one of whom is my future husband at age 12. The kids fight, play and protect each other. But no one can protect Tommy from the shadow creeping across his life and engulfing his family.
A closer look reveals Tommy's leg braces, made necessary by an insidious, incurable motor neuron disease we now realize was amyotrophic lateral sclerosis (ALS). Amyotrophic means wasting and thinning of muscles; lateral sclerosis is the deterioration and scarring of lateral ...