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Informing governance through evidence-based research on REBs: challenges and opportunities. (Research Ethics Boards)

Health Law Review

| March 22, 2009 | Owen, Michael; Emerson, Claudia; Kolopack, Pam; Preto, Nina; Sampson, Heather; Townsend, Anne; Willison, Donald; Woodgate, Roberta L. | COPYRIGHT 2009 Health Law Institute. This material is published under license from the publisher through the Gale Group, Farmington Hills, Michigan.  All inquiries regarding rights should be directed to the Gale Group. (Hide copyright information)Copyright

In 2004, Joan Sieber made a passionate call for research that would inform our understanding of the workings of Institutional Review Boards (IRBs) or Research Ethics Boards (REBs). Although there is a rich scholarship on the ethical conduct of research involving human subjects, she argued, "Ethical decision making by scientists and institutional review boards should not be based on hunches and anecdotes. ... These questions should be answered through empirical research." (1) More recently, in a study of IRBs and their knowledge of regulations governing pediatric research, Strousytup et al argued that IRBs "need to open up and allow themselves to be looked at. ..." (2) ...

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