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"A child's liver saved my life". twenty-four years after receiving an organ transplant, Trine Engebretsen met the family who made a selfless decision in the midst of awesome grief.(THE COSMO POST)

Cosmopolitan

| January 01, 2009 | Dubin, Julie Weingarden | COPYRIGHT 2009 Hearst Communications, reprinted with permission of Hearst. This material is published under license from the publisher through the Gale Group, Farmington Hills, Michigan.  All inquiries regarding rights should be directed to the Gale Group. (Hide copyright information)Copyright

[ILLUSTRATION OMITTED]

By the time I turned 2. I had almost bled to death five times. It was gastric bleeding, accompanied by a severely distended abdomen and terrible jaundice--even the whites of my eyes were a deep yellow. Doctors were baffled at first, but after we visited 12 different hospitals throughout the United States and abroad, my parents finally received the grim diagnosis: alpha-1 antitrypsin deficiency, a genetic disorder that causes the liver to harden. Without a transplant, the disease would kill me.

This was the early 1980s, when liver transplants were largely experimental; no one from my home state of Florida had ever had one. My parents were told that there were already 50 sick children under 5 years old in the U.S. waiting for a liver transplant. And even if I were somehow lucky enough to be offered one of the precious organs, I'd have only a 30 percent chance of living ... for six months.

The Call

On January 19, 1984, when I was 2 and a half and gravely ill, a little girl named Amanda DeLapp from Mayfield, Kentucky, died of a brain tumor. She was only 18 months old. Her family donated her organs, and since doctors believed I had less than 24 hours to live, I was moved to the top of the organ-recipient list.

The transplant was to take place at the children's Hospital of Pittsburgh, in Pennsylvania, and so within a couple of hours of receiving the phone call, my family and I boarded a private Lear jet in Miami. After 18 hours of surgery, I became one of the youngest people ever to receive a liver transplant, and my new liver began working immediately. (My mom said my original one looked like a rotten potato.) I had to take medication daily growing up, but I was allowed to be active--I did lots of swimming and gymnastics.

When I was about 24, I finally tried contacting the DeLapps, but I never heard back. I figured they didn't want to have any contact. Then one night about a year ago, I got a MySpace friend request from a 23-year-old girl named Keisha DeLapp from Mayfield, Kentucky. My eyes welled with tears, and I practically fell off my chair. There was a picture of Keisha, and the message read "I am Keisha DeLapp. I am Amanda DeLapp's sister." I hadn't even known Amanda had a sister--she was born after Amanda died.

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