Generations articles from March 2009

Generations archives from March 2009

Promising Ataxia research receives funding for 2009.
March 22, 2009... The response to the National Ataxia Foundation's invitation for ataxia investigators to submit research applications was the greatest it has been in NAF's history since the Foundation began providing research funding. NAF's four grant...

From the desk of the executive director.(National Ataxia Foundation)(Conference notes)
March 22, 2009... The National Ataxia Foundation recently held its 52nd Annual Membership Meeting in Seattle, Washington on March 20-22. The meeting was a great success and we are truly thankful to the Seattle Area Ataxia Support Group and the British Columbia...

How to explain Ataxia.(Brief article)
March 22, 2009... During the National Ataxia Foundation's Annual Membership Meeting in Seattle, chapter and support group leaders and ambassadors met to share their success stories in fundraising and ataxia awareness raising. Information on other aspects of...

Good nutrition and healthy meals on a budget.(Caregiver's Corner)
March 22, 2009... Good Food Is Key To Good Health. Good nutrition requires effort, knowledge and some planning. To some degree, it's as much about what you don't eat as what you do eat. It starts with changing how you view your plate: Instead of making meat...

Ride Ataxia III travel journal.(Travel narrative)
March 22, 2009... Starting on March 16, 2009, a robust group of 70 Ride Ataxia III participants departed from Portland, Oregon, on an unforgettable journey. The group traveled 200 miles by cycle, encountering steep hills and battling brutal weather conditions...

Ataxia questions & answers.
March 22, 2009... The National Ataxia Foundation (NAF) receives hundreds of requests for information as well as specific questions about ataxia symptoms and treatments. NAF provides over 20 fact sheets about the various types of ataxia, tissue donation, cognition...

"Climb Every Mountain": The National Ataxia Foundation 52nd Annual Membership Meeting: Seattle, Washington--March 20-22, 2009.
March 22, 2009... The 2009 Annual Membership Meeting was hosted by our Seattle, WA area Ataxia Support Group and the British Columbia Ataxia Society. This was the first year that this conference has been co-hosted by an international ataxia support group. Many...

Life in the balance.(ataxia)(Essay)
March 22, 2009... I took the title for my article from a well-written book by Thomas Graboys, MD, whose memoir gives an eminent physician's view of life, love, and loss while suffering from an aggressive form of Parkinson's disease and dementia. Anyone who has...

Back safety and transfers: golden rules to be safe.(Caregiver's Corner)
March 22, 2009... Being a caregiver puts you at risk for back injuries. Many occur when lifting, moving, transferring or changing the position of the one in your care. Improper movements can cause injury to the person being moved, such as abrasions to skin,...

Ataxia management.
March 22, 2009... There is currently no cure for the ataxias. But there are management strategies that can be implemented. The National Ataxia Foundation maintains a website with valuable and reliable information to assist those affected by ataxia and their...

My ataxia story.(Essay)
March 22, 2009... I remember often being picked last for teams in primary school sport activities. I remember being a clumsy person. I remember trying to walk in heels keeping nay legs together. I so wanted to look like my peers--a bit taller, slimmer and in...

West Central Florida Ataxia Group.(Chapter and Support Group News: From Around the Country)(Conference notes)
March 22, 2009... On January 10th we had our group meeting at Feather Sound Community Church in Clearwater. The meeting was well attended. We served lunch and afterwards got down to discussing ataxia awareness, ways we can promote it to the general public as well...

N.E. Florida Ataxia Support Group.(Chapter and Support Group News: From Around the Country)(Brief article)(Conference notes)
March 22, 2009... Our first Northeast Florida Support Group meeting of 2009 was held on January 31 at the Baptist South Medical Center in Jacksonville. We had a great turnout, which included some new members, and also a breakaway session for ataxians and their...

Denver Area Ataxia Support Group.(Chapter and Support Group News: From Around the Country)(Brief article)(Conference notes)
March 22, 2009... The spring 2009 meeting of the Denver Area Ataxia Support Group was held March 14 at the Swedish Hospital's Conference Center. Attendees included 18 individuals and one dog. We held a potluck luncheon and had three speakers. Dr. Barbara Rende...

Greater Atlanta Ataxia Support Group.(Chapter and Support Group News: From Around the Country)(Brief article)(Conference notes)
March 22, 2009... The Greater Atlanta Ataxia Support group held their meeting Saturday, February 7, at the Emory University Rehabilitation Center. We had 22 people attend. We were pleased to have Brian Mulvaney from Florida as a guest. The highlight of the...

NAF represented at Rare Diseases Clinical Research Network meeting.(National Ataxia Foundation)(Brief article)
March 22, 2009... As a member of the Coalition of Patient Advocacy Groups of the Rare Diseases Clinical Research Network, the National Ataxia Foundation is able to participate in meetings that provide information on the activities of the Office of Rare Diseases...

Chapters, support groups and ambassadors.(Directory)
March 22, 2009... The following is a list of National Ataxia Foundation chapters, support groups and ambassadors. The use of these names, addresses and phone numbers for any purpose other than requesting information regarding NAF or joining a chapter or support...

Calendar of events.(Calendar)
March 22, 2009... Saturday, May 2, 2009 New England Ataxia Support Group Meeting Noon-3 p.m. in room 210 of the Yawkey Building at MGH. For more information please contact Donna Gorzela at (978) 475-8072. www.ataxia. org/chapters/phoenix/default.aspx ...

Memorials and in your honor.
March 22, 2009... The National Ataxia Foundation is grateful to those who have made contributions in memory or in honor of their friends and families whose names are listed below. This list reflects contributions made from November 2008 through February 2009. We...