Generations articles from March 2006

Generations archives from March 2006

"Beacon of Light": the National Ataxia Foundation 2006 Annual Membership Meeting.
March 22, 2006... BOSTON, MASSACHUSETTS--MARCH 17-19, 2006 The 2006 Annual Membership Meeting was hosted by our New England Ataxia Support Group and held in Quincy, MA. Thank you all for your efforts in making this meeting a success. Approximately 475...

2006 NAF awarded grants.(causes of the disease ataxia)(causes of the disease Spinocerebellar ataxia)(mutation the causative of various complications in a disease )
March 22, 2006... Your research contributions are used to fund important studies that result in a better understanding of the ataxias. Some scientists are looking for additional genes, while others study identified mutated genes to understand the process by...

Molecular and genetic characterization of SCA5.(NAF Research Fellowship Award 2004: Final Summary)(Disease/Disorder overview)
March 22, 2006... SCA5 gene identified Spinocerebellar ataxia type 5 (SCA5) is a dominantly inherited form of hereditary ataxia which primarily affects the cerebellum. Dr. Laura Ranum and colleagues began working with members of a large American ataxia...

Jackie: a caregiver's story.(Jacqueline)(influence of multiple system atrophy)
March 22, 2006... How do you say no to a woman who had been an outstanding mother and homemaker for the last 45 years? A beautiful spirit who always put her children's needs before her own? A devoted and compassionate spouse who made the world a better place...

Matching gifts provide important funding.(National Ataxia Foundation seeks contributions)(Brief article)
March 22, 2006... Many companies will match your contributions made to the National Ataxia Foundation. Please ask your employer if they provide an employee matching gifts program. Also, please encourage your co-workers to support the Foundation. You and your...

From the desk of the executive director.(National Ataxia Foundation's Annual Membership Meeting)
March 22, 2006... These are very exciting times for the Foundation. Fresh off the 2006 NAF Annual Membership Meeting, plans are now underway for the 50th Annual NAF Membership Meeting in 2007. It was wonderful to see old friends and meet many new ones at the...

Managing Speech and Swallowing Problems: A Guidebook for People with Ataxia.(Brief article)(Book review)
March 22, 2006... This book is intended to serve as a basic guide for understanding and managing the ataxic disorder. In no way does this information replace the directions or program set up by one's physician and/or speech language pathologist; rather it is a...

Making a difference.(Jordan C. Hubbard Foundation )
March 22, 2006... On Nov. 19, 2005 the Jordan C. Hubbard Foundation made a $10,000 donation to the National Ataxia Foundation. The presentation was the fulfillment of a dream that one day, Jordan's life would make a difference. Jordan was born Dec. 31,...

National Ataxia Foundation Membership FAQ.
March 22, 2006... Who Are NAF Members? NAF members are a diverse group of people who have an interest in ataxia. They are persons with ataxia, ataxia families, friends of ataxia families, members of the medical community, NAF board members, persons...

Thank you Athena.(services of Athena Diagnostics Inc.)(Brief article)
March 22, 2006... Athena Diagnostics, Inc. is a leading provider of diagnostic testing for neurological disorders, including many of the ataxias. Athena has been a generous donor over the years in support of the National Ataxia Foundation's Annual Membership...

Lemonade from Lemons: in loving memory of Diane Marriott.(In memoriam)
March 22, 2006... Diane never quit! She was given extra time to be with us because she had a special purpose which wasn't fully understood until her passing. How she lived her life was heroic in the eyes of those around her. This is written in memory of a...

Thank you Donna.(services of Donna Gruetzmacher)(Brief article)
March 22, 2006... In December of 2005, at the National Ataxia Foundation Board of Directors meeting, NAF President DeNiece Roach presented a plaque to former Executive Director Donna Gruetzmacher for over 30 years of service to the NAF. Although Donna is...

Caregiver's corner.(caregiving after a stroke)
March 22, 2006... NAF has permission to reprint the following excerpts from the "The Comfort of Home" series. Caregiving After a Stroke Patience and Understanding is Needed Stroke is the third leading cause of death in the U.S. Recognizing...

Shopping on the web.(www.GreaterGood.com)(www.iGive.com)(Brief article)
March 22, 2006... What if you could shop without leaving your home, have a vast array of stores to choose from, no waiting in lines, no parking problems, no transportation issues or costs, special discounts, and for each purchase you make a donation would be...

Quotes from the 2006 NAF Annual Membership Meeting.
March 22, 2006... Great job! Thank you! General Sessions on three days--very good. I was very impressed with the comprehensive scope of this meeting, The planning was excellent but the depth of presentation, the medical expertise of the medical...

Alabama Ataxia Support Group.(meetings)(Brief article)(Conference notes)
March 22, 2006... The Alabama Ataxia Support Group met in January in Birmingham with 24 members and guests present. Debra Eddins Laken of UAB spoke on and demonstrated CPR procedures. The group then enjoyed a lunch prepared by Pat Gercio and a period of...

Chesapeake Chapter.
March 22, 2006... As this issue of Generations goes to press, our Chapter will have held its Annual Medical Meeting on February 11 at Montgomery College in Rockville, MD. Topics included some recent biochemical findings regarding neuroprotection and links to...

Maine Ataxia Support Group.(interview of Nancy Dominy )(Interview)
March 22, 2006... Below are remarks given by Nancy Dominy to the Ataxia Group of Maine on June 1, 2005. Nancy was part of a panel discussion on the topic "What Is Working With Me in Dealing with Ataxia." Her comments were in response to questions asked her by...

The Greater Jacksonville Ataxia Support Group.(meetings)(Brief article)(Conference notes)
March 22, 2006... The second ataxia support group meeting for the Jacksonville and Northeast Florida area was a success. We increased our group to 19, which included those with ataxia as well as caregivers and family. We all spent a wonderful Saturday...

Los Angeles Ataxia Support Group.(meetings)(Brief article)(Conference notes)
March 22, 2006... We gathered at the WCIL on Saturday, March 11, and watched the NAF video "Together there is Hope." We discussed meeting options for either bi-monthly or quarterly get-togethers. We voted to stay with our bi-monthly schedule with our next...

Kansas City Support Group.(meetings)(Brief article)(Conference notes)
March 22, 2006... The Kansas City Support Group met December 4, 2005 for our annual Christmas dinner at the Northeast Library meeting room. Everyone contributed to the dinner. Good food, good conversations and a good time were had by all. Our group is...

Tampa Bay Ataxia Support Group.(meetings)(Conference notes)
March 22, 2006... Our group was involved with Macy's Charity Shopping Event, held on October 29, as a fundraiser. Because of its success, we hope to participate again in April. Our November meeting was two-fold. Instead of a light lunch at the beginning...

Quilt for Ataxia.(Chapter and Support Group News from Around the Country)
March 22, 2006... At the 2007 National Ataxia Foundation Annual Membership Meeting, NAF will be celebrating their 50th anniversary. This is a great accomplishment! We are putting together a quilt to represent all of the Chapters, Support Groups, and...

NAF chapters & support groups.(National Atoxia Foundation)(directory)(Directory)
March 22, 2006... This is a list of NAF chapters and support groups. The use of these names, addresses and phone numbers for any purpose other than requesting information regarding NAF or joining a chapter or support group is strictly-prohibited. We encourage...

Ambassador listing.(directory)(National Ataxia Foundation)(Directory)
March 22, 2006... The following is a list of NAF Ambassadors. Ambassadors are often in areas not served by a support group or chapter. Please get to know your Ambassadors, and if you would like to become an Ambassador please contact the NAF office for an...

Calendar of events.(Calendar)
March 22, 2006... May 6 Pennsylvania S.G. Luncheon 6 DenverArea Ataxia Support Group Meeting from 1 to 3 p.m. Potluck at the Swedish Hospital Medical Conference Center in the Spruce A/B Meeting Rooms. 13 ...

Memorials and in your honor.
March 22, 2006... The National Ataxia Foundation is grateful to those who have made contributions in memory or in honor of their friends and families whose names are listed below. This list reflects contributions made from November 2005 through February 2006....