Generations articles from March 2000

Generations archives from March 2000

A New Type of Ataxia, Spinocerebellar Ataxia Type 12 (SCA12), may be Caused by an Unusual Trinucleotide Repeat Expansion Mutation.
March 22, 2000... The Laboratory of Genetic Neurobiology (directed by Dr. Russell L. Margolis and located within the Division of Neurobiology of the Department of Psychiatry of the Johns Hopkins University School of Medicine), is attempting to identify the...

Available Charitable Medical Air Transportation.
March 22, 2000... One of America's best kept secrets is the existing charitable medical air transportation system. Its purpose is to ensure that no financially needy patient is denied access to distant specialized evaluation, diagnosis or treatment for lack of...

The Next MILLENNIUM.
March 22, 2000... As we leave one century and enter a new millennium one reflects upon what has been and what will be. Dramatic changes have occurred just in the last decade in computers, Internet, and gene cloning. What is possible in the next century is...

STOCK TALK.
March 22, 2000... Stock brokers, day traders, discount brokerage firms, financial planners, and commodity traders all have one thing in common -- when/what to buy and when/what to sell. If only we had a magical crystal ball, that could tell us the future. ...

Tracing the Family Tree: Getting Started.
March 22, 2000... Your most valuable genealogical data is the information available to you from relatives. This information is the foundation for further family tree research... it is data which is not available anywhere else. Genealogy always begins by...

President Clinton Signs Ban on Genetic Discrimination in the Federal Workplace.
March 22, 2000... On February 8, 2000 President Clinton signed an executive order that bans genetic discrimination in the federal workplace. This order prohibits federal departments and agencies from using genetic information to make decisions regarding...

Window on Washington.
March 22, 2000... Congress Increases Funding For NIH Reflecting an ongoing commitment to double federal funding for biomedical research over the five-year period beginning in 1997, the Congress last year increased the budget for the National Institutes of...

WHY BE A MEMBER OF NAF?
March 22, 2000... Membership in any organization is the basic building block which secures the foundation and makes it strong. Our members come from all walks of life. Some are young, old, rich, and poor. Nevertheless, each has made a financial commitment in...

A Magic Food?
March 22, 2000... Here we go again, a new magic food. When I was a boy, the magic food was spinach. We were also given kidney, liver, gizzards, etc., because glandular meats were also magic foods. Then came brewer's yeast, wheat germ, yogurt and blackstrap...

A Revolution In Wheelchair Design.
March 22, 2000... Correspondent John Hockenberry reports on a revolutionary new wheelchair that is designed to really go places. June 30 We have the know-how to fly to the moon, but most people who can't walk still get around with what is essentially...

To You, Amy, for Mother's Day.
March 22, 2000... Norman has ataxia, doesn't know which type but suspects that it's recessive, is 60 years young, and keeps going thanks to his wife, Amy. In the main, I'm in pain. Pharmaceuticals don't help, Your cuticles do, ...

The Vanishing Act.
March 22, 2000... I have Spinocerebellar Ataxia, (SCA), a progressively degenerating neurological disorder related to Alzheimer's, ALS, Parkinson's, and Huntington's diseases. It is characterized by a slow disappearance of nerve cells in my brain. Thankfully,...

Annie's Answers for Everyday Living: Internet Crawling with Employment Opportunities.
March 22, 2000... Answer: With a computer and access to the Internet, people with disabilities can perform an extensive job search-without even leaving their home or office. The President's Committee on Employment of People With Disabilities (PCEPD) has...

A Brief History of [my] TIME.
March 22, 2000... General Background Growing up in Southern California of the 60's and 70's, I had a childhood rather typical of someone with post-adolescent-onset Friedreich's Ataxia -- fairly normal up until the age of about 18, with a marked ineptitude...

STRUCK TWICE.
March 22, 2000... After reading the articles in the Spring, 1999 issue of Generations, and the story by Mark Dias in particular, I felt a need to write. His story really resonated with me, as my Cerebellar Ataxia has many of the same features as his. I could...

Lay Back and Pedal.
March 22, 2000... "What I really want to do is ride a bicycle, but that's impossible now." With that lament, Jan (my wife) spoke of another dream-crushing reality that Joseph's Disease presented. Balance is, literally and figuratively, a fundamental of...

Do You Know Your Ambassadors?
March 22, 2000... The following is a list of National Ataxia Foundation ambassadors. Ambassadors are often in areas where there is not a support group for contact information for other ataxia families. Please get to know your ambassadors, and if you would like...

Pinky's Story.
March 22, 2000... "All things are possible to him that believeth. If ye have faith nothing shall be impossible unto you," says the Bible. How many of us believe this? In today's world, where moral values have been thrown to the winds, and where everyone talks...

BOOKS AND RESOURCES.
March 22, 2000... Library Service Charles Williams from Granite City, Illinois would like to make other readers aware of a handicapped shut-in service through his local library that he likes. Every three weeks the Granite City Public Library comes to his house...

Memorials and In Your Honor.
March 22, 2000... M/M Clyde Adams Florence B. Allen Gordon C. Anderson Marjorie Anderson Carlalee Ankney Beth Ann Asp Jeffry D. Bailey Justin Baker Margaret Baker Baldwin Family Christmas M/M Charles Baldwin M/M James E. Baldwin Virginia...

The Drive.
March 22, 2000... Some build bridges for immortality. These feats were not meant for a group Such as we. No buildings will we ever build. No towers to the sky. Yet, we have found some other ways and We've begun to try. ...

God Bless Thy Year.
March 22, 2000... Submitted by Rita Garcia Chandler, AZ Thy coming in, Thy going out; Thy rest, Thy traveling about; The rough, the smooth -- The bright, the drear -- God bless thy year. Scatter seeds of kindness ...

Ageing with a Disability.
March 22, 2000... Bette Davis, (the actress) once said, "getting old is not for sissies." "Amen," I say, and a "Double Amen," to those who are not only getting older, but have a physical disability, or a chronic illness. To many of us who are ageing, we don't...

Northern California Ataxia Support Group.
March 22, 2000... Map #34 The Northern California Ataxia Support Group held its quarterly meeting on Saturday, October 9, 1999, in the recreation hall of Our Savior's Lutheran Church in Lafayette, California. Once again, the weather was at its "California...

Maine Ataxia Support Group.
March 22, 2000... Map #18 The Maine Ataxia support group had their first meeting January 22, 2000. Twenty-two people attended. We had the meeting at Mercy Hospital, who donated lunch for everyone. Our guest speaker, Dr. Schmahmann, spoke positively about...

Central Pennsylvania Support Group.
March 22, 2000... Map #19 The Central Pennsylvania Ataxia Support Group was very honored to welcome DeNiece Roach, the National President of the National Ataxia Foundation as guest speaker at a recent meeting. Her very meaningful speech involved the...

Chesapeake Chapter and Support Group.
March 22, 2000... Map #3 Our Howard County Ataxia Support Group (HCASG) met on Saturday 4 December at the Howard County Wellness Center in Columbia, MD. Twenty-six people attended. First, Dr. Iracema Leroi, a Neuropsychiatrist from Johns Hopkins Hospital,...

NAF Chapters and Support Groups.
March 22, 2000... 1. North Texas S. G. David Ballard 2160 Graham Street Paris, TX 75460 (903) 785-7058 E-mail: ballard@1starnet.com Web: http://www.geocities.com/ HotSprings/Resort/5685 2. Canada Support Groups (A) Rose Gallant %...

My Life With FA.
March 22, 2000... I am 36 years old, live in Equador, South America, and have suffered from FA since the age of 20. I have two siblings with the same disease, Maria, 46, and Ramon, 40. The situation in Equador has been and continues to be very difficult...