Generations articles from June 2006

Generations archives from June 2006

Hope and new horizons: cerebellum: new concepts and directions for treatment.(National Ataxia Foundation annual meetings)(Conference notes)
June 22, 2006... The following was presented at the 2006 NAF Annual Membership Meeting in Boston, MA. Jeremy D. Schmahmann, MD, received his medical degree at the University of Cape Town Medical School in South Africa. After completing his residency in...

Genetic testing.(presentations of National Ataxia Foundation annual meeting)(Conference notes)
June 22, 2006... The following was presented at the 2006 NAF Annual Membership Meeting in Boston, MA. Lisa Demers, MS, obtained her Bachelor of Science degree in biology from Boston College before heading to Acadia University for her Masters degree in...

Identifying the molecular mechanisms for Friedreich's ataxia and frataxin in using drosophila transgenic models.(National Ataxia Foundation annual meeting)(Conference notes)
June 22, 2006... The following is a summary of the presentation "Identifying the Molecular Mechanisms of Friedreich's Ataxia and Frataxin using Drosophila Transgenic Models" at the 2006 NAF Annual Membership Meeting in Boston, MA and the research project...

SCA3.(Spinocerebellar Ataxia type 3)(presentations of National Ataxia Foundation annual meetings)(Conference notes)
June 22, 2006... The following was presented at the 2006 NAF Annual Membership Meeting in Boston, Mill. Joseph Friedman, MD recently moved from Memorial Hospital in Pawtucket, RI, where he was Chief of Neurology, Professor of Clinical Neurosciences and...

New web site coming soon.(www.ataxia. org)(Brief article)
June 22, 2006... The National Ataxia Foundation is pleased to announce that our web site, www.ataxia. org, is currently being revised and updated. There will be a number of phases in the development of the new web site and the first phase launch date will be...

Calling for photos.(News & Notes)
June 22, 2006... NAF would like to share with our web site visitors photos of our members. If you wish to submit your photo, please email your digital photo to the Foundation in care of Lori at lori@ataxia.org. By submitting your photo you have agreed to have...

New chat room available.(http://groups.msn.com/AtaxiaYoungAdults)(Brief article)
June 22, 2006... There's a new Ataxia Young Adults Group on MSN. If you are a young adult and would like to chat with others about ataxia, come check us out at http://groups.msn.com/AtaxiaYoungAdults.

"Beacon of light": the National Ataxia Foundation 2006 Annual Membership Meeting.(Photo Gallery)
June 22, 2006... BOSTON, MASSACHUSETTS--MARCH 17-19, 2006 [ILLUSTRATIONS OMITTED]

Generations word find.
June 22, 2006... Please see directions and terms at right. Answers appear on page 40. Word Find Directions: Circle the terms defined below when you find them. The terms can be found across, down, and diagonal. Ataxia: Poor coordination. It can be...

Featured board member of the NAF: Harold Crawford.(National Ataxia Foundation)(Biography)
June 22, 2006... Harold Crawford has been involved with the National Ataxia Foundation for more than 30 years. Harold's generosity and dedication is only overshadowed by his commitment in helping others. In 1976 Harold co-founded the NAF Mississippi...

SNT-MC17/idebenone--a promising drug candidate for Friedreich's Ataxia (FRDA).
June 22, 2006... Santhera Pharmaceuticals (www.santhera.com) is a Swiss biopharmaceutical company which is focusing on the development of novel treatments for Friedreich's Ataxia (FRDA) and other neuromuscular diseases. The company was founded in 2004 by the...

From the desk of the executive director.(importance of an National Ataxia Foundation membership)(Editorial)
June 22, 2006... In this issue of Generations I would like to focus on the importance of an NAF membership. The National Ataxia Foundation is a membership-supported, nonprofit organization dedicated in serving ataxia families. Membership is really the...

Alabama Ataxia Support Group.(meetings)(Brief article)(Conference notes)
June 22, 2006... The April 22 meeting was held at the Red Lobster in Vestavia Hills, AL. Members enjoyed a meal together and then convened for the meeting. Becky Donnelly and son Rick shared some of the details of the NAF Annual Meeting in Boston. The...

Greater Atlanta Ataxia Support Group.(meetings)(Brief article)(Conference notes)
June 22, 2006... The Greater Atlanta Ataxia Support Group met on April 1 at the Emory Center for Rehabilitation Medicine. The focus of the meeting was to discuss the NAF Meeting in Boston and potential fund raising events for 2006. Greg Rooks, Dave Zilles,...

Arizona Ataxia Support Group.(services and meetings)(Brief article)
June 22, 2006... The Arizona Ataxia Support Group is alive and well! The group has recently welcomed an addition. After 15 years with Rita Garcia at the helm as Group Leader in Phoenix, a Southern Arizona Group has sprung up in Tucson with led by Bart Beck....

Chesapeake Chapter and Support Groups.(meetings)(Conference notes)
June 22, 2006... We have been blessed in the past with clear weather for our annual medical meetings, but this year was not so lucky. Despite a blizzard on its way, the Chesapeake Chapter held its annual medical meeting at the Montgomery College Theatre Arts...

Howard County Ataxia Support Group.(meetings)(Conference notes)
June 22, 2006... A group of 15 attended the April meeting of the HCASG. An announcement was made that Maryland's House and Senate had approved funding for stern cell research. The Governor has earmarked $15 million already. Our thanks and appreciation are...

Los Angeles Ataxia Support Group.(Chapter and Support Group News from Around the Country)
June 22, 2006... Our group meets bi-monthly at the Westside Independent Living Center (WCIL), a fully accessible facility located at 12901 Venice Blvd. in Venice, CA. The meetings are held on the second Saturday of the month from 2 to 4 p.m. This year we...

Pennsylvania Ataxia Support Group.(celebrations)(Brief article)
June 22, 2006... Our group recently celebrated our 10th anniversary. The Positive People in PA who meet monthly the second Saturday of each month in Norristown have evolved into a very supportive and caregiving group. The Hospital of the University of PA...

NAF chapters & support groups.(National Ataxia Foundation )(Directory)
June 22, 2006... This is a list of NAF chapters and support groups. The use of these names, addresses and phone numbers for any purpose other than requesting information regarding NAF or joining a chapter or support group is strictly prohibited. We encourage...

The ripple effect.(human kindness in helping ataxia associations)(Brief article)
June 22, 2006... The simple act of dropping a small pebble in a pond first takes an action. That action creates a reaction to the water in terms of sound, a splash, and ripples. As the sound and splash fades away, the ripples continue affecting the entire...

Ambassador listing.(directory)(Directory)
June 22, 2006... The following is a list of NAF Ambassadors. Ambassadors are often in areas not served by a support group or chapter. Please get to know your Ambassadors, and if you would like to become an Ambassador please contact the NAF office for an...

Workplace giving.
June 22, 2006... If you ar a federal employee who gives through the combined federal campaign (CFC), please consider giving to the National Ataxia Foundation. Over the years, CFC support has helped support promising, ataxia research and provided vital...

International Ataxia Awareness Day 2006.
June 22, 2006... Most of you have seen the NAF t-shirts and bumper stickers which read, "Ataxia is not a foreign cab." It is an eye-catching and attention-getting slogan that helps people know about ataxia. However, if everyone had heard of ataxia there would...

Calendar of events.(Calendar)
June 22, 2006... July 8 Northern California Ataxia S.G. Meeting 8 Northern Texas S.G. Meeting at Las Colinas Medical Center, 6800 MacArthur Blvd., Irving 8 Los Angeles Ataxia S.G. BBQ at Woodley Ave. Park 8 San Diego Ataxia S.G. Meeting from...

Memorials and in your honor.
June 22, 2006... The National Ataxia Foundation is grateful to those who have made contributions in memory or in honor of their friends and families whose names are listed below. This list reflects contributions made from March 2006 through April 2006. We are...

Tampa Bay Area Support Group memorial to Joyce Robbins.(in memoriam)(In memoriam)(Brief article)
June 22, 2006... In lieu of our quarterly report in the Chapter and Support Group News section, I would like to dedicate this space to a very special lady. Joyce Robbins was a member of our support group for more years than I know. She was the leader of...