Generations articles from June 2004

Generations archives from June 2004

Friedreich's ataxia update.
June 22, 2004... The following was presented at the NAF 2004 Annual Membership Meeting. Dr. Wilson began telling us that he has agreed to lend his time and expertise to any drug company that is developing compounds that might be promising for FA. He has...

NAF now.(National Ataxia Foundation)
June 22, 2004... The following was presented at the NAF 2004 Annual Membership Meeting. The theme of the 2004 annual meeting is "Plan Ahead... Now." It's what NAF does and has done. We have created NAF's mission statement, which is "The National Ataxia...

Doctor, patient and society: a home interview.(Interview)
June 22, 2004... Editor's Note: Last fall several members of the British Columbia Ataxia Society were interviewed by first year medical students. The following is a home interview that took place on December 3, 2003. I was unusually calm that day. The...

New NAF Executive Director.(National Ataxia Foundation)(Brief Article)
June 22, 2004... The National Ataxia Foundation is pleased to announce that Michael Parent has been recently hired as the Foundation's new Executive Director. Michael first became involved with the Foundation in 1982 as a consultant. In 1987 the Foundation...

Generations word find.(Glossary)
June 22, 2004... Directions: Circle the terms when you find them. The terms can be found across, down, and diagonal. Answers on page 41. [ILLUSTRATION OMITTED] Word Find Terms ATAXIA--Poor coordination. It can be used to refer to a neurologic...

Dealing with loss and life; drawing inspiration from others.
June 22, 2004... We all have to deal with loss--loss of mobility, of our memories, of a loved one. We also have a choice in how we deal with our losses. I am a 52-year-old woman who has SCA 3. I was tested and diagnosed positive with a 75 CAG repeat on...

Ready to lend a hand.(Brief Article)
June 22, 2004... This new feature in Generations is dedicated to the advice. guidance, recommendations, opinions and inspirations that help get us through the day. If you have something you would like to share we would love to hear from you. If you are...

How to tell if someone is a VICTIM or a SURVIVOR--it's all in how you see it!(Brief Article)
June 22, 2004... VICTIM is caught up in their own situation vs. SURVIVOR helps others! VICTIM is resentful of what another has vs. SURVIVOR is motivated. VICTIM has lost something vs. SURVIVOR is more than the disease/disorder. VICTIM is stopped...

Americans with Disabilities Act.
June 22, 2004... Although the Americans with Disabilities Act (ADA) became federal law in 1992, many of us still have little understanding of what it is. The second in a series of articles about the ADA (the one appearing in the Spring 2004 edition of...

Medicare reform: what's the fuss about?
June 22, 2004... NAF has permission to print the following publication by NORD, the National Organization for Rare Disorders, Inc. For a full version of the article, please visit www.rarediseases.org. Last year, Congress felt compelled to add prescription...

Stock talk.(Brief Article)
June 22, 2004... If you are a day trader, use a discount broker, or are being advised by a full service brokerage firm you know what a wise investment can do for your portfolio. Investors look at performance and growth of a company and invest accordingly. ...

Plan ahead ... now! National Ataxia Foundation 2004 annual membership meeting: February 27-29, 2004 San Diego, California.
June 22, 2004... Michael White getting ready for Birds of a Feather, being helped by two wonderful volunteers [ILLUSTRATION OMITTED] Right: Volunteers helping in the registration room [ILLUSTRATION OMITTED] Smile all around at the Saturday...

Meet the NAF's Board of Directors.(National Ataxia Foundation)(Brief Article)
June 22, 2004... New to this issue of Generations and in future issues will be a section featuring a National Ataxia Foundation Board Member. The NAF Board of Directors are volunteers who dedicate countless hours in helping ataxia families. The Board is...

Featured member of the National Ataxia Foundation Board: DeNiece Roach.(Brief Article)
June 22, 2004... DeNiece Roach, the eldest of eight children, was born and raised in St. Paul, MN. DeNiece currently lives in Minneapolis and is employed at Wisconsin Physicians Service (WPS) as a Claims Representative. Her expertise in medical benefits has...

Caregiver's corner: the following was taken from the "The Comfort of Home--Caregiver Assistance News" series.
June 22, 2004... Practical Steps to Cope A person with Alzheimer's or dementia sometimes sees and hears things that are not really there. For example, a dark colored rug in the center of the room can look like a hole in the floor to someone who has...

Living on a cloud.
June 22, 2004... On a May morning, I took my cocker spaniel, Shasta, to the veterinarian. The ride was pleasant. I drove slowly and avoided bumps. There was a slight chill in the air so I wore a light jacket. The office visit was fast and painless for both of...

Tampa Bay Ataxia Support Group.(Chapter and Support Group News from Around the Country)
June 22, 2004... Fourth Annual Picnic The Tampa Bay Ataxia Support Group held its Fourth Annual Picnic in the Park on April 10 at beautiful Philippe Park in Safety Harbor, FL. We could not have asked for better weather. It was a sunny day with the...

Chesapeake Chapter and Support Groups.(Chapter and Support Group News from Around the Country)(Column)
June 22, 2004... We have been blessed in past years with clear weather for our annual medical meetings, and so it was again this year on February 7 that the previous day's cold, icy rain stopped, and the Chesapeake Chapter held its annual medical meeting at...

BC Ataxia Society, Canada.(Chapter and Support Group News from Around the Country)
June 22, 2004... The BC Ataxia Society has finally settled in their new home at the Richmond Caring Place. The facilities are central in location, convenient and completely accessible. Our office e-mail is now info@bcataxia.org and we can be found on the web...

Northern California Ataxia Support Group.(Chapter and Support Group News from Around the Country)(Brief Article)
June 22, 2004... We were honored to have Dr. S.H. Subramony as our guest speaker at the April 13 quarterly meeting of the Northern California Ataxia Support Group. He gave a two-part presentation "Ataxias: Scientific Update and Less Discussed Symptoms."...

Alabama Ataxia Support Group.(Chapter and Support Group News from Around the Country)(Brief Article)
June 22, 2004... The Alabama Support Group met April 24 at the Convent Presbyterian Church in Birmingham, AL. We greatly appreciate the generosity the church has shown in letting us use their facilities for so many years. Two of our members, Rick Donnelly...

Greater Atlanta Ataxia Support Group.(Chapter and Support Group News from Around the Country)(Brief Article)
June 22, 2004... The Greater Atlanta Ataxia Support Group was created with a meeting on Saturday, March 13, 2004. All meetings are scheduled in Atlanta at the Emory University Center for Rehabilitation Medicine. Eighteen individuals were in attendance at our...

Memorials and in your honor.
June 22, 2004... The National Ataxia Foundation is grateful to those who have made contributions in memory or in honor of their friends and families whose names are listed below. This list reflects contributions made from February 2004 through April 2004. We...

Kansas City, MO support group.
June 22, 2004... The Kansas City support group has been meeting for 14 years at the northeast library. We have had 10-14 people at every meeting. We enjoy coffee, tea and goodies at each meeting. Last Christmas we had 19 people attend! This last year we...

NAF chapters and support groups.(Directory)
June 22, 2004... This is a list of NAF chapters and support groups. The use of these names, addresses and phone numbers for any purpose other than requesting information regarding NAF or joining a chapter or support group is strictly prohibited. We encourage...

Ambassador listing.(Directory)
June 22, 2004... The following is a list of NAF Ambassadors. Ambassadors are often in areas not served by a support group or chapter. Please get to know your Ambassadors, and if you would like to become an Ambassador please contact the NAF office for an...

Calendar of events.(Calendar)
June 22, 2004... July TBA BC Ataxia Society, Canada Annual Picnic at Deas Island Regional Park (RSVP) 3 North Texas Ataxia S.G. 10 a.m.-12 p.m. at Los Colinas Medical Center 10 Northern California Ataxia S.G. Meeting at Our Savior's Lutheran...

Goals.(Poem)
June 22, 2004... Goals To five a full life, To have lots of fun, To hove something to talk about When each day is done. To laugh each day, To make others smile, To always go That extra mile. To enjoy the...