Generations articles from June 2000

Generations archives from June 2000

Summary of Research and National Ataxia Foundation's Medical Goals.
June 22, 2000... To: Members of NAF attending the annual meeting in Biloxi From: Stefan M. Pulst, MD Research Director, NAF I regret very much not being able to speak to you personally today, but a medical emergency in my immediate family requires my...

A Missing Mother.(poem)
June 22, 2000... Can I see your love today? Are we still able to laugh and play? Will I be holding your hand so light? And may I cry on your breast tonight? Sometimes you respond respond with respond with great life, And then you...

International Ataxia Awareness Day September 25th 2000.
June 22, 2000... Whenever people talk or write about Ataxia the phrase "There's nothing we can do for them," is often used by well meaning friends or relatives, because at present there is no known cure. There are two things, which anyone can do to help when...

The ARSACS Gene Is Identified.(Autosomal Recessive Ataxia of Charlevoix-Saguenay)
June 22, 2000... Twelve years of meticulous and difficult work on the identification of the ARSACS gene defect have finally paid off! We are happy to announce the identification of the mutations causing ARSACS (short for Autosomal Recessive Ataxia of...

The Choice in Giving.(National Ataxia Foundation)
June 22, 2000... The National Ataxia Foundation supports ataxia research and provides important programs for ataxia families. The generosity of individuals enables the Foundation to fund promising ataxia research studies, provide important programs and...

Kim's Korner.(a tribute to Mike)(Obituary)
June 22, 2000... It is with extreme sadness and a heavy heart that I write this article. My husband, Mike, passed away February 5th, 2000. At 37, his death was sudden and unexpected. For me, this has been not only the loss of my husband, but also my best...

A Stock Tip.(donating stock to the National Ataxia Foundation)
June 22, 2000... Where should one place part of their stock portfolio in this age of fluctuating markets, old economies versus new economies, and wondering which direction the Federal Reserve Board will next take? The answer lies in how your money can best...

Cruise for Ataxia.
June 22, 2000... Again this year, we had an outstanding time. And once again the ports of call, ship, and food were great; greater still were the new friendships we established and the established ones, which were renewed. People with ataxia, their friends,...

WheelchairNet.(www.wheelchairnet.org)
June 22, 2000... New wheeled mobility products are constantly arriving in the marketplace. People and the health care professionals they work with often lack knowledge about these products and their relationship to the individual's desired lifestyle. Changes...

Window on Washington.(dietary supplements for ataxia)
June 22, 2000... Dietary Supplements More and more Americans, including those of us diagnosed with dominant and recessive ataxias, are turning to dietary supplements to improve or maintain health. Recognizing the need to promote scientific study of the...

The CAG and Clinical Trials.(Cooperative Ataxia Group)
June 22, 2000... The CAG (Cooperative Ataxia Group) is a group of clinical investigators in the United States. Most people with dominant ataxia know what CAG means, because most dominant ataxias are CAG expansions. We thought that it would be a good name for...

Window View of NAF.(National Ataxia Foundation)
June 22, 2000... On behalf of the Board of Directors, I would like to welcome you to the 2000 Annual Meeting of the National Ataxia Foundation. This meeting is made possible by the Mississippi Chapter and Camille Daglio, the Chapter President. Let's give them...

Genotype Phenotype Correlations.(ataxia diagnosis)
June 22, 2000... I became interested in this field as the genetics of ataxia were first beginning to appear. I owe most of that to Susan Perlman, who is my mentor in ataxia. This work could not have been done without contributions of a large number of...

GAA Repeat Expansions and Frataxin.(ataxia genetics)
June 22, 2000... I will talk a little about genetics and move onto Friedreich ataxia (FA), in particular the GAA repeat, and Frataxin. The human genome refers to all of the genetic material that is in the nucleus of most of our cells. We estimate that there...

A Wonderful Opportunity.(National Ataxia Foundation conference in Biloxi, Mississippi)
June 22, 2000... "This was a wonderful opportunity to hear so much on ataxia and meet others with ataxia. It helps to know the fellowship of others with ataxia." "All medical staff was great. They took time to interact and answer questions whenever we...

Chapter and Support Group Reports.(National Ataxia Foundation)
June 22, 2000... Presented at the 2000 Annual Meeting NAF's Leadership Meeting was held in conjunction with the Annual Membership Meeting on Thursday, March 23rd in Biloxi, Mississippi. Chapter and Support Group Leaders met to share and discuss future...

Who is This?(living with ataxia)
June 22, 2000... The funniest thing has happened in my life. Not funny ha, ha, but funny weird. A clumsy stranger has moved in with me. She's bossy and rude and inconsiderate, and she does things I wouldn't even THINK of doing! She stutters and stammers...

Do You Know Your Ambassadors?(National Ataxia Foundation representatives)
June 22, 2000... The following is a list of National Ataxia Foundation ambassadors. Ambassadors are often in areas where there is not a support group for contact information for other ataxia families. Please get to know your ambassadors, and if you would like...

Memorials and In Your Honor.(National Ataxia Foundation list of contributors)
June 22, 2000... The National Ataxia Foundation is grateful to those who have made contributions in memory of or in honor of their friends and families whose names are listed below. This list reflects contributions made from February 1, 2000 through April 30,...

Procrastination.
June 22, 2000... I don't know about you, but I procrastinate. That is, putting off doing a task until tomorrow, that should have been done yesterday. I'm guilty of that at times, and if you will be honest, you are guilty too. Here is what happens, -- we find...

Dietary Supplements: Tell Your Doctor.(drug interactions)
June 22, 2000... This article is reprinted from NORD's Winter 2000 newsletter. A recent study found that 70% of people do not tell their physicians that they are taking dietary supplements. Most people believe that since the supplements are "natural,"...

Chapter and Support Group News From Around the Country.(National Ataxia Foundation)
June 22, 2000... Maine Ataxia Support Group Map # 18 by June West The Maine Ataxia Support group just had there second get together this past April, at Mercy Hospital. The meeting had both return members from the January meeting, plus a few new...

NAF Chapters and Support Groups.(National Ataxia Foundation)
June 22, 2000... The following is a list of NAF chapters and support groups. The use of these names, addresses, and phone numbers for any purpose other than requesting information regarding NAF or joining a chapter or support group, is strictly prohibited. We...