Generations articles from December 2001

Generations archives from December 2001

2002 Annual Membership Meeting St. Louis, Missouri: Gateway to Hope.(National Ataxia Foundation)
December 22, 2001... With the holidays finally over it's time to turn our attention to the NAF 2002 Annual Membership Meeting. This year we have been invited to beautiful St. Louis, Missouri. In 1965 the Gateway Arch, St. Louis' most famous landmark, was opened...

Inflammatory genes are upregulated in expanded ataxin-3 expressing cell lines and SCA3 brains.(abnormal SCA-3 gene)(Brief Article)
December 22, 2001... A research group in Bonn, Germany, teamed with colleagues in the Netherlands to perform this study. The group, led by Dr. Bernd Evert, was interested in how having an abnormal SCA-3 gene changes what other genes in the brain are turned on or...

Class Reunion.
December 22, 2001... It was my class reunion, and all through the house I checked in each mirror and begged my poor spouse To say I looked great, that my chin wasn't double, And he lied through false teeth, just to stay out of...

Testing on antioxidants in Friedreich ataxia knock-out mouse model.
December 22, 2001... The following is an update on research funded by NAF in 2000. Background Friedreich ataxia is an inherited disease where a "stutter" in a gene causes reduced production of a protein essential for life. The protein, frataxin, is...

Effects of insulin like growth factor-1 (IGF-1) Over Expression on Purkinje Cell Survival in SCA-I Transgenic Mice.(Brief Article)
December 22, 2001... This is a summary of research funded by NAF in 2000. Insulin like growth factor-1 (IGF-1) belongs to a group of protein molecules present in the nervous system that have an important role in the maintenance and growth of nerve cells....

Seek a Miracle is cooking for a cause.(cookbook as fundraiser for Friedreich's Ataxia research)(Brief Article)
December 22, 2001... Thanks to the supportive people who contributed to the 1st Edition of the Cooking For a Cause cookbook, we successfully raised nearly $10,000 for Friedreich's Ataxia research. Due to popular demand, we are really "cooking" now to publish a...

NIH laying the groundwork for human embryonic stem cell research. (Window on Washington).(National Institutes of Health)(Brief Article)
December 22, 2001... "President Bush has opened the laboratory door. Now, let's get our best and brightest scientists into the lab so they can go to work." Tommy G. Thompson, Secretary of Health and Human Services "On Aug. 9, President George W. Bush...

Reminiscing ... when I was a kid.
December 22, 2001... When I was about 11 years old, in an alley, I found a 28-inch discarded bicycle frame, which had the back wheel, the sprocket, chain, no handle bars, no front wheel, no seat and no fenders. I used ingenuity, planning, scrounging for parts,...

Designated giving through CFCs.(Combined Federal Campaign)(Brief Article)
December 22, 2001... If you are a Federal employee who gives through your local Combined Federal Campaign (CFC), the National Ataxia Foundation's CFC number is 1028. Please give as generously as you can, and please take the time to ask your coworkers to also...

Exercise.(Brief Article)
December 22, 2001... You have probably read or heard many times that warning that all individuals should engage in some sort of exercise daily. That's great, but what about we who are bedridden and cannot stand or even sit up without falling over due to a lack of...

SCA8 research update: this is a summary of research funded by NAF in the year 2000.
December 22, 2001... In 1999 we reported finding the gene that causes SCA8. Since that time we have made a great deal of progress in understanding the genetics of SCA8. SCA8 is unique among ataxia genes because SCA8 is caused by a long CTG repeat instead of a CAG...

Review of NIH symposium "50 Years of Brain Research": October 9-10, 2001.(National Institutes of Health)
December 22, 2001... To commemorate their 50th anniversaries, the National Institute of Neurological Disorders and Stroke (NINDS) and the National Institute of Mental Health (NIMH) cosponsored a two-day scientific symposium, celebrating 50 years of Brain...

International Ataxia awareness day.
December 22, 2001... For the second year, all across the country National Ataxia Foundation members, support groups, and chapters helped make International Ataxia Awareness Day on September 25, 2001 a huge success. We would like to thank everyone for making more...

My spiritual journey.
December 22, 2001... My spiritual journey began in 1943, when I was nine years old. I received my first Bible from the First Methodist Church. I went to Sunday school each week. Dad and Mom took us to church every Sunday. I also went to summer Bible School for...

War: the shadow over Christmas.(Poem)
December 22, 2001... Fatherless children all around, Loved ones dead -- never found, Christmas soothes a heavy heart, All survivors make a fresh start. God gives His love, dries each tear, He comforts and takes away their fear....

The whistle.
December 22, 2001... My husband, Don, has Marie's Ataxia and is confined to a wheelchair. He has trouble with his speech and has a hard time calling me when he needs me, especially if l am in the sun room with the TV on. Reaching for a bell would be difficult, so...

Living with Ataxia.
December 22, 2001... It was a clear sunny day as l skipped down the back lane on my way home from school. Being only nine years old, I had no worries except to make sure I made it home in time to go to bible class. I waved at the neighbors working in their...

Why is membership so important?(National Ataxia Foundation)
December 22, 2001... Some of you may wonder, should I pay for an annual NAF membership when I already give for ataxia research? If NAF only supported ataxia research, the Foundation would not need a membership dues structure. However, the National Ataxia...

Northern California Ataxia Support Group. (Chapter and Support Group News from Around the Country).
December 22, 2001... Map #34 Mike Fernandes, Group Leader The Northern California Ataxia Support Group holds its quarterly meetings on Saturdays in the spacious recreation hall of Our Savior's Lutheran Church in Lafayette, CA. Due to circumstances that...

Twin Cities Ataxia Support Group. (Chapter and Support Group News from Around the Country).
December 22, 2001... Map #31 Joe and Ginny Cain, Group Leaders The Twin Cities Support Group used International Ataxia Awareness Day on Sept. 25 to have a rally at a downtown park in St. Paul. About 25 people attended the rally. Mayor Norm Coleman of St....

Maine Ataxia Support Group. (Chapter and Support Group News from Around the Country).
December 22, 2001... Map # 18 We all met at the Casco Bay YMCA on Saturday Oct. 13 from noon to 3:00 p.m. The scheduled speaker, Dr. Stephen Rioux, was unable to attend, so this gave the group a chance to get aquatinted with the new attendees. We talked...

B.C. Ataxia Society. (Chapter and Support Group News from Around the Country).
December 22, 2001... Map #2C This year got off to a great start with our first meeting being held on Sept. 27. We welcomed three new members and welcomed back two members who had moved away. This now means we have 18 regular members attending, plus others on...

Louisiana Chapter. (Chapter and Support Group News from Around the Country).
December 22, 2001... Map #11 The "Louisiana Party People" continued to do what we do best. Our philosophy has been... if it isn't fun, we're not doing it! We held our gatherings all over the state so we could reach those wishing to take part in these...

Central Ohio Support Group. (Chapter and Support Group News from Around the Country).
December 22, 2001... Map #62 Hello Fellow Ataxians from Central Ohio Support Group #62! Barrie and Linda Schwartz were our host and hostess this year. We met at Blacklick Woods Metropolitan Park just outside of Columbus, OH on Saturday, July 14. After...

Chesapeake Chapter and Support Groups. (Chapter and Support Group News from Around the Country).
December 22, 2001... Map #3 Annual Picnic -- The gracious hospitality of hosts Jenna and Mike Connor for the use of their home, and the friendly collaboration of Carole Anne Connor helping her brother and sister-in-law in the preparations, is greatly...

Memorials and in your honor.(list of donors to the National Ataxia Foundation)
December 22, 2001... The National Ataxia Foundation is grateful to those who have made contributions in memory or in honor of their friends and families whose names are listed below. This list reflects contributions made from September 1 through November 30,...

NAF Chapters and Support Groups.(National Ataxia Foundation)(Directory)
December 22, 2001... The following is a list of NAF Chapters and Support Groups. The use of these names, addresses and phone numbers for any purpose other than requesting information regarding NAF or joining a chapter or support group is strictly prohibited. We...

Ambassador listing.(National Ataxia Foundation Ambassadors)(Directory)
December 22, 2001... The following is a list of NAF Ambassadors. Ambassadors are often in areas not served by a support group or chapter. Please get to know your Ambassadors, and if you would like to become an Ambassador please contact the NAF office for an...

Calendar of events.(for the National Ataxia Foundation)
December 22, 2001... January 9 New York City Support Grp. Mtg., Map #27 9 Willamette Valley Support Grp. Mtg., Map #17 11 Golden Triangle Area Support Grp. Mtg., Map #13 12 San Diego Support Grp. Mtg., Map #21 12 Baltimore City Ataxia Support...

Stock talk.(donating appreciated securities to the National Ataxia Foundation)
December 22, 2001... As we enter a new year with new opportunities, there is one investment strategy which remains a solid choice. Donating appreciated securities to the National Ataxia Foundation is a wise investment. In a time of economic uncertainty and market...