Generations articles from December 2000

Generations archives from December 2000

Ataxia Awareness Day was a Success!
December 22, 2000... All across the country NAF members, support groups, and chapters helped make the first annual International Ataxia Awareness Day on September 25, 2000 a big success. We would like to thank everyone for creating more public awareness of the...

Families and Advocates Partnership for Education (FAPE).
December 22, 2000... If you have a child with a disability and you want more information on special education laws and services, the Families and Advocates Partnership for Education (FAPE) can help. FAPE is a national project which informs families about the...

Conference in New Orleans.(Society for Neuroscience Annual Conference)
December 22, 2000... I attended a neuroscience exhibition and worked in the National Ataxia Foundation (NAF) booth, along with Denise Drake and Helen Bishop. Over 25,000 people were present at the conference. Neurologists, psychiatrists, opthamologists,...

Annual Meeting 2000 Questions & Answers.
December 22, 2000... Traditionally, each Annual Membership Meeting is concluded with a panel of speakers that respond to questions. The panel members were Drs. Day, Gomez, Pandolfo, Perlman, Ranum, Subramony and Wilensky. Here are a few questions and...

Clinical Management of Ataxia.
December 22, 2000... What is important, more than anything else, is how you feel as a person and how you feel late in the day. I was supposed to speak on the clinical management of ataxia, I did not like that title, so I changed it to: "Since We Can't Halt or...

Window on Washington.
December 22, 2000... The Congressional Record is the most widely recognized published account of the debates, proceedings, and activities of the United States Congress. It is available in print form in local libraries across the country and read by thousands in...

Brain Facts.
December 22, 2000... * The brain, the most complex structure of the human body, weighs about three pounds. * The brain encases 100 billion or more nerve cells, and it can send signals to thousands of other cells at a rate of about 200 miles per hour. *...

DISABLED HUNTING.
December 22, 2000... I have been hunting with my father since I was 12 years old. When my father died of cancer five years ago I didn't have anyone to go hunting with. I have been wheelchair bound for about seven years due to Friedreich's Ataxia, making it...

2001 ANNUAL MEETING.
December 22, 2000... "Wellness While We Wait" To Be Held In Land Of 10,000 Lakes Yes, it is that time of year again -- time to get those suitcases packed and finalize your plans to attend NAF's 2001 Annual Membership Meeting. In this article, you will...

Apology.
December 22, 2000... There are no excuses and only regrets that the National Ataxia Foundation has scheduled the 2001 Annual Membership Meeting the week of Passover and Palm Sunday. Please accept our sincerest apology. In scheduling this event, NAF attempted...

Exciting 1926 Heavyweight Fight: Tunney whips Dempsey to win world championship.
December 22, 2000... Tunney whips Dempsey to win world championship I was just a kid, nine years old, and my brother O.D., (Dee for short, named after our father Oliver Delore) was 12 when Gene Tunney beat Jack Dempsey for the world heavyweight boxing...

Wife, Confidant, Friend and Caregiver.
December 22, 2000... I am laying here in the quiet early morning hours reflecting on the days events, trying to make some sense out the day. Something has changed in our simple, quiet life and in the dreams that my husband Bill and I had often dreamed about. ...

How to Live with Ataxia.
December 22, 2000... Editors Note: The following is an article about ataxia (poor coordination) that is due to another medical problem. Not everyone that has ataxia has one of the hereditary or sporadic forms of the disease. I became ataxic in March 1993 due...

DOWN THE ROCKY ROAD.
December 22, 2000... At first, it did not seem a big deal. I had a rare, progressive neurological condition, so I fell sometimes. So everyone falls, right? I just did it more often. And sometimes people thought I was tipsy when I wasn't. As time went by, I...

Ataxia -- What Is It?
December 22, 2000... Many readers have asked about references in my column to "Ataxia", to the disease, to the local Support Group, to the Chesapeake Chapter, to the National Foundation, and most recently, to the International Ataxia Awareness Day. What is...

Northern California Ataxia Support Group.
December 22, 2000... Mike Fernandes Map # 34 Effective January, 2000, the following members of the Northern California Ataxia Support Group have generously agreed to perform the functions listed adjacent to their name(s): * Mike Fernandes -- Support...

Chesapeake Chapter and Support Groups.
December 22, 2000... Map #3 by Carl Lauter, Kathy van't Hoff, Tim Daly, and Bill Lee Chapter Picnic: August 5 There were 45+ attendees at the Chapter picnic on August 5th, sponsored by the Howard County Ataxia S.G.. Members and guests came from four...

Maine Support Group.
December 22, 2000... Map #18 June West On Saturday, October 21st the Maine Ataxia Support Group had a meeting at Mercy Hospital in Portland. The group had an active discussion on the future of the organization. A decision was made to delegate some of the...

Louisiana Chapter.
December 22, 2000... Map #11 by Denise Drake What an exciting year this has been. Friends and families in and around our state have done so very much for each other. Goodwill and sharing among so many has continued. We lose beautiful folks and meet new...

Omaha, Nebraska Ataxia Support Group.
December 22, 2000... Map #35 Lavonne Randolf For September 25, 2000, the first International Ataxia Awareness Day, our group was able to get three proclamations signed. One by the mayor of Papillion, NE thanks to Tim and Anne Bremer, one by the mayor of...

Ambassador Listing.
December 22, 2000... Following is a list of NAF ambassadors. Ambassadors are often in areas where there is not a support group for contact information for other ataxia families. Please get to know your ambassadors, and if you would like to become an ambassador...

Memorials and In Your Honor.
December 22, 2000... The National Ataxia Foundation is grateful to those who have made contributions in memory or in honor of their friends and families whose names are listed below. This list reflects contributions made from October 1, 2000 through November 30,...

Dancing in my Mind.(Poem)
December 22, 2000... My world has changed. I see it now through different eyes. The ugliness is of a manageable size. My colors fly; I feel high. It is noon but stars shine in the sky! What life has taken I've regained anew ...

february 31st.(Poem)
December 22, 2000... You are you and I am me. Waiting for you is like waiting for a thimble to empty the sea. It pains me so to know You and I have nowhere to go. I realize with tears in my eyes That you will never be my...

NAF Chapters and Support Groups.(National Ataxia Foundation)(Directory)
December 22, 2000... The following is a list of NAF chapters and support groups. The use of these names, addresses and phone numbers for any purpose other than requesting information regarding NAF or joining a chapter or support group, is strictly prohibited. We...

STOCK WATCH.
December 22, 2000... The stock market has seen its ups and downs lately. What will be the direction during the next few months? No one knows for sure, but one thing that remains constant is donating stock to the National Ataxia Foundation is a wise...